This page is currently under construction as we work to get more pictures up.
Hailey and her mommy
Carter and Hailey swinging together
Carter and Gus
Carter and paw-paw
Carter and mommy
Neil, Miranda, and Carter
Carter loves his computer
Birthday girl
Hailey and mommy
Hailey and all her birthday gifts
Sleeping beauty
Happy birthday Hailey
Carter was a ninja for halloween
Hailey (Age 3, soon after epilepsy diagnoses and before the severe regression due to Battens)
Neil, Hailey, Neil’s parents (Debbie and David), Carter/ Christmas 2007
Carter (age 2)
Miranda, Hailey, Neil (before any diagnoses) Carter (age 2)
Hailey (age 2, before any diagnose)
Carter, Hailey (Halloween 2005), soon after epilepsy diagnoses
Hailey
Miranda and Hailey (age 2, before any diagnoses)
TOP-Hailey (age 3, soon after epilepsy diagnoses) MIDDLE-Hailey (3) Carter (6 months) BOTTOM-Hailey (age 5 at the Circus, in her wheelchair. Soon after Battens diagnoses)
Neil and Carter at the Circus
This page has the following sub pages.
Neil and Miranda,
I am a friend of Dave and Debbie in Jacksonville. I have sent your website to all my prayer warriors, who have send it to their prayer circles, so know that you are being lifted up in prayer and the lord will open those needed doors for you. Have faith at the lord moves in mysterious ways, he is with you and know his will be done, just always trust and know he loves you. I know it is hard as you often wonder why god – your children are very special and he knows that and they are touching the lives of many that you don’t even know.
Liz Broxton
To have both of your children in the clutches of death is more than any parent should have to swallow. I wish you well.
I have read and forwarded to all on my email list to keep your precious family in their daily thoughts and prayers.
Love & Prayers
Nan
I just read your story and I am going to pass it on to all my friends and family. We will try to figure out a way to help you, it may not be much, but I know many people with giving hearts and we will try.
I give you a big computer hug Hailey & Carter!
Deana Schafer
Your family, is in my prayers. May God bless and His Angels watch over you. Love and prayers.
I was just reading the update that Air Canada would not let you and your daughter board their flight. I was ashamed and very disheartened by the news. Those BASTARDS would of reacted differently if it was one of THEIR CHILDREN that needed the immediate treatment.
Your entire family is in my prayers.
GOD BLESS
Aleathia.
Your children are in my prayers. Just to let you know, that not all Canadians are heartless like Air Canada. I cannot believe they would deny your daughter this chance. I am truly sorry and I will keep hoping and wishing and praying. God bless your babies.
Please know that your kids are in my prayers and thoughts. You have 2 adorable kids and may God bless them and your family.
I have just learned of your plight from recent news story on cnn.com – and wanted to express my sorrow at any family having to deal with such a sad situation. I wish you all the best and most of all hope.
I will keep you in my thoughts
Amanda.
I will pray for your family. I can’t imagine the frustration, despair, and anger that you felt after your recent flight. Sometimes I wonder where the courageous common man of times past has gone. There was a time when a man–even a pilot of a major airline–would do what’s right no matter the consequences. I am so sorry for the pain you are enduring.
I am praying for you and your 2 babies my son was just diagnosed with beckwith weidemann syndrome a very rare disease. And I wish nothing but luck for you and your children you keep fighting for them cuz thats the only way to get help. Believe me I have been through it too!!
I cant imagine having 2 to go through it, You can hang in there and GOD BLESS YOU AND YOUR BEAUTIFUL BABIES!!!!!
Your precious babies are in my prayers….they will get the help they need.
God Bless you.
God Bless you and your little precious little ones.
have read about your children and challenges. Know that our God is an awesome God and that all these prayers going up for you and your babies fall on loving ears.
I pray that your plans to reach China are soon fulfilled or an alternative to your needs can be found closer to home.
I don’t know y’all, but I saw your story this morning on fox news. My heart goes out to you and your family thru this difficult time.
I’ll keep you in my prayers.
Sue from Phoenix.
Your story is incredible. I have a 4 year old and 2.5 year old daughters and it breaks my heart to think of what your going through. Keep up the fight and know the Lord has you all in His hands!!!!!!
God Bless You.
My prayers are with your family and your children. May God and his angels be with you and your family. Be strong and keep fighting as it looks like you are!!!!!
I saw your heart breaking story this morning on Fox 26 News (Houston, Texas). I visited your website and read your story. After praying for all of you, I felt moved to share your story with others. I have a MySpace account, so I posted a Bulletin; in hopes that others will visit your site, read your story, pray for you, repost the bulletin & send a donation if possible.
The Lord truly works in mysterious ways…
Peace be with you all.
God Bless You. I will keep you all in my prayers and thoughts. You are so strong.
I have been following your story, and I want you to know that I have been praying for you. Your story has touched my life so much and I wish everyone the best of Luck.
Hi, My name is Rhiannon Ryan, I live in shepherdsville also, We all are sending our love from Home, we are keeping Hailey in our prayers at Beech Grove Fellowship church, (down the road) when you get back you can come see us,
Love always
Rhiannon Ryan
May god watch over all of you and you are in my familys prayers before we go to bed and when we eat. I have sent this site to all my friends and you all are in then prayers too.
God Bless You.
You are wonderful people to be dealing with this. I hope all is well, and everything will be okay.
P.S. The kids look and seem great keep doing whatever you are doing.
Scrolling through the Jon and Kate plus 8 website I came across your website address. My curiousity got the best of me and I spent the next twenty minutes reading your story. Your children are beautiful. Your family will be in our prayers.
May god still watch over all of you
you are all in my prayers
Thank the lord hailey and carter are doing better than before the threatments
GOD BLESS YOU ALL!!!!!!
I came across your page via Jon & Kate plus 8’s website and I just wanted to say how sorry I am , as a mother of a 21 month old boy I cannot imagine how you must feel, I hope you are blessed with good friends and family to help you through this. Your children are absolutely beautiful and I wish you all the best.
God bless..
I feel so sad for them god bless yall!!
I just saw your story on the John & Kate Plus 8 website, and I had to visit your site. I lost 2 very precious students of mine to Late Infantile Batten’s (they were sisters). The disease has touched my life in a very large way. You and your children are definately in my prayers.
I FOUND OUT ABOUT THIS WEBSITE ON http://WWW.SIXGOSSELINS.COM AND DECIDED TO COME ON AND SEE WAHT IT IS ABOUT. THIS WAS SHOCKING AND I STARTED CRYING SEEING THE PICTURES. I HOPE THE TRIP TO BEIJING GOES WELL AND I AM THRILLED TO READ THAT HAILEY IS STILL STABLE. GOD BLESS YOU AND YOUR CHILDREN.
YOU ARE IN MY PRAYERS,
LYNSEY
What an amazing family you have~Hailey and Carter are such beautiful children. Stay strong and keep the faith! I will pray for you all!
I just have to say you are in my thoughts and I admire you so much for coping so well with what must be the hardest thing in the world to go through. If there is anything I can do for you, please don’t hesitate to email me.
Your story made me cry. You children are so beautiful. You are in my prayers every night. As long as you pray to God, you children will get better. Recently, my friend’s daughter died from epilepsy.
God bless you and your family, peace be with you!!!
always,
gabrielle
God Bless your family. You seem like such amazing, caring, and attentive parents. Good luck to the babies! They are in my prayers
May God Bless you and your family. Your story is so touching! I will add you all to my prayer list at Church! I am a mother of a 3 yr old with problems.And I know how trying it can be. I have seen you all in the news and paper..I just know God can heal people!
I have seen your story on the news. Little did I know that Cindy was your mom. I talked to your father for awhile after our Com. friends meeting. Your family are in our prayers. take care
dear friends,’
i wish you all the best for haily and carter thats more than anyone should have to go through i wish that i could donate money but i am only a child and i have $3.00 ell thats all for now please keep us updated thank you
Dear family,
I seen your website on jon and kates website. I want you to know that everything will be okay and may god bless.
you and your family are in my prayers! im so so so very sorry that this is happening to you and wish i could do more than just pray but i know that god listens! so i hope that it helps!
all my love and prayers
jordan (TX)
Hi, I saw your website on Jon and Kates website.
Cant imagine what your going through but just want to let you know yous are all in my thoughts.
Hailey and Carter are so beautiful, give them a big kiss from me.
Donna,
Scotland.
I heard of your story from reading something on Jon & Kate plus 8 and i can honestly say that I wish there was something I could do financially for you and your family.
You’re in my prayers.
-lianna
You have two absolutely beautiful children. I came across your story on the sixgosselins.com website and I hope that many others will also come and learn about your story of coping with this disease in the best way that you know how. Please continue to keep the hope. I’ll be thinking about you!
Sincerely,
Leslie
Cleveland, Ohio
Hello!I am Alice from Argentina,and i have a doughter with the same disease,she is 14 years old her name is Agustina,she has it since she was 4.I am very interested in the treatmen in China and i`d like you to write me in my mail,because i want to save my doughter life.
Best wishes for you and for Hailey.
I found out about this website on http://www.sixgosselins.com and i decided to visit. I was inspired by how your family keeps fighting!! you all are in my prayers.=)
I will pray for your children. I hope and pray that they can grow up safely ,and they will beable to see all the wonderful things god and the world have to offer. some day they will have children of theyre own and live a happy life!
Love
Megan from TN
I will save up my money to donate to your family I always look forword to donating money to people in need or charities!
Love
Megan