It is day 26 in China for Hailey and I. We are actually scheduled to leave on March 19th, 9 days from now. However, the doctors have asked us to stay for an additional week, mainly due to her infection. The head neurologists (Dr. Wu and Dr. Wang) would like more time to stabilize Hailey’s condition. They feel that with an extra week’s worth of medication, O.T. and P.T., she will likely show even more signs of improvement. While I was a little hesitant at first, of course I had to agree and do whatever they think is best for Hailey. I trust the doctors here and I know that they only want the best for her. It’s just really hard being so far away from home and we miss Neil and Carter terribly. They also said that there wouldn’t be any additional costs for the extra week, so that was very nice of them.
So, while I was getting really excited to come home and literally counting down the days, I realize that I have to do what is best for Hailey. If the doctors here believe that they can get Hailey that much better with an extra week, than we have to stay and let them try. We’ve already been here for almost four weeks and the time has really flown by. I’ll just have to start a new countdown… only 16 more days!!!
The doctors got Hailey’s blood work back today and they said that the infection is much better now and nearly gone. She still has a little congestion left over from it, but that’s about it. Now that we’re staying longer, they are going to delay her next stem cell injection. Instead of getting it this Thursday, she’ll get it next Tuesday. They’ve still been having us stay in the room all of the time, until she is completely over the pneumonia, so she has been getting all of her P.T. and O.T. in her bed. She has been doing so good the last few days. Right now they are focusing on trying to get her to roll over by herself. She’s also been trying to talk to us so much more lately and I’m so happy to hear her sweet little voice again. It’s nothing we can understand, more like faint baby talk… but I love it. I can tell she wants to talk so bad, she just can’t get it out. We’re still waiting to see that precious smile again. We try ALL the time and we can tell when she’s happy, just by her eyes and her expression, but no smile yet. The day we see that again, is the day that I know this was all worth it.
Praise God for the awesome blessings I only feel more to come. We are constantly praying and thinking about your family. And thank God for not having to pay for the extra week.
I can’t wait to rejoice with you and your family when you share the day Hailey smiles again for you.
God Bless & just lean on him for all your understanding & strenght.
Gloria Andino
I am so glad to hear that she is doing better. I saw the clip and the news and we were all very concerned.
We are all praying for you both, and I know that God is looking over you and the extra week will be worth it.
I have gotten a new computer, and cannot retrieve your email address, so if you get a chance send me your email address and we can talk more.
God Bless,
Michelle
Wow, It’s all I can say! She has come so far along and looks so good. She’s lucky to have such loving parents that refuse to give up! We still pray every day for your children to get better and everytime i hear her name, Battons or stem cell She’s is all i can think of.
I am not a political person however i was joyed to hear that your new president has opened up the doors to stem cell research once more, Lets all prey that helps Carter And Hailey sooner than later.
Here’s some more good news… If you remember when we first corresponded last year my daughter was stricken with cancer, Well she has been cured! So there’s a battle against disease we can all be proud of and one less to worry about. I hope you find some hope in that. So one down Two to go, rite!
Keep your chin up Girl!
Always in our prayers!
Robbie